Daily Post 001: Hello World, Hello Self

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I feel like crap today. I have a headache that’s only now starting to go away. I don’t think I’m sick, though I’ve been congested the last few days… weeks really. It’s come and go. No covid symptoms, so at least there’s that.

It’s winter. It’s past the holiday season. I survived it. I had my cry session a few days ago where Ox held me while I cried into his shoulder about how much I miss mom and how I want her back.

I passed my first semester of nursing school. I did really well it in. I maintained a 4.0 until Thanksgiving break. I think my lowest class was an 85 or something. I don’t feel accomplished about it. I became suicidal twice during those four months. Academically it might have seemed like I was being successful, but internally I wasn’t.

I was able to switch back into the part-time program for the following semesters. Instead of graduating at the beginning of May, I will be graduating in December again; nearly two years later. That knowledge sucks, but it feels better than trying to make it through another four months of full-time work and full-time school.

I currently am not taking any classes for the next four months. No prerequisites. No “this class seems fun”. Nothing except work and trying to find myself again.

Maybe that’s what a lot of this comes down to. I’ve lost myself yet again. I allowed it to happen. I haven’t gone to the gym since the start of my program. Jon and I are having a talk on Sunday about if we want to renew the lease together because the living situation sort of sucks. Ox and I are doing well and I feel that has to do with having winter break from school and actually being able to spend time with him instead of studying 9 million hours a day.

I’ve started playing World of Warcraft again. It’s given me an outlet. It’s given me a community and tasks and focus on something other than the issues in my life. I know I’m using it as avoidance. I know I’m letting myself indulge in an addiction instead of doing laundry or being at the apartment or grocery shopping. There’s a part of me who cares about it; who thinks I should do something other than nothing. And yet, the injured part of me just wants to hide and not hurt.

I’m tired. Still. After nearly a month away from school, I’m still so tired of everything. I had wanted to grocery shop today while Ox was at work. Feeling like death vetoed that though and it sucks. I could have done all of this stuff yesterday, but I didn’t, and now it won’t get done and so I’m a slacker, a failure, and I hate these emotions. These thoughts.

They’re not true, but I have very little to show for myself other than a virtual game that means nothing.

I don’t even know if I can say I’m lost because being lost implies you had a direction you were going, a destination you were trying to reach.

I don’t want to graduate. I don’t want mom to be dead. I want her to be here. I want her to say “I love you”. “I’m proud of you.” “I believe in you.” Anything. I would give so much just to hear her say anything to me one more time. To have one more hug. One more hand squeeze. Anything. Anything to not feel so alone and pointless. Something to hold on to; to let me know it’s not pointless and it’s worth it to keep going day after day, year after year of this hurt and change and difference.

Financially things are going alright for once in my life. It’s nice to have that area fairly stable and not affecting things. Politically I think my government and a clusterfuck of a disastrous dumpster fire. I don’t waste much energy thinking about it or stressing over it. Working an essential job may factor into my mentality of not giving a fuck. Regardless of what happens, my patients are still going to require treatment. I’m still going to have to get up at 2 am on the days I work to set up the clinic. I can’t take time off work like other people to protest or be involved in movements. I voted and that’s all I have the capacity to do.

Work has been going alright. One of my patients died shortly after school started. It was extremely unexpected. I wrote a letter to him which I never posted. Maybe I will at some point. I guess it depends on if I actually post this writing. There was one other I started a while ago which I never finished. I haven’t wanted to write in so long. I haven’t had the time or energy. And even now, I don’t really know if it’s supposed to help with anything since I’m so out of touch with myself.

I guess I could start there. “Hello, Self. It’s been a very long time, hasn’t it? How are you?”

Not good.

Why, not good?

I don’t know. I really don’t know and figuring it out is going to hurt and make me cry and I don’t want to do it. I’ve been cancer-free for a year. This time last year I wasn’t able to lift a laundry basket because I had to trust a stranger to cut my throat open. I had a new scar that I had to get used to. I had a week with my dad where he came out and made sure I was ok. I had a sociology class I was taking as a way to get me out of the house and stay involved in society.

I had a birthday where mom wasn’t able to call me. I had a Christmas where I got a new computer chair and a new desk which I can’t set up because in four months I might be moving again, but I don’t know where yet. Still in Nebraska, but will I be able to afford a house? Do I have to stay in an apartment? Will it be in Lincoln, Hickman, or Beatrice? Am I going to have to pay a pet fee for the kittens? What’s Jon going to do? Is he going to think I abandoned him? Am I bitch of a sister?

There are all these things going on and all I want is for life to not be a fucking disaster.

I’ve made it this far. I’ve made it through five years without mom. I’ve made it a year past cancer. I can figure all of this out. I can. I know I can. I don’t want things to stay the way they are and instead of looking at everything all at once, I know I need to break it down into small things. Small tasks. One task. One chore. A small chore. A doable chore to prove to myself that one thing can get done. If one thing can get done then other things can get done, one small step at a time.

And so I’ve done my first step. I’ve written. I’ve said hello to myself for the first time in months. I’ve acknowledged that I’m not doing well along with some of the areas that need attention, mending, healing. I didn’t think the cancer thing was such a big deal, but I guess it is in the dark corners of my head.

I feel weak and tired and that’s ok. I’m allowed to feel those things. I’m allowed to feel hurt and sad and alone. I’m allowed to miss mom. Holidays are always hard. Winter is always hard. I will get through this hard, and while today maybe another day where I play a video game and merely eek by in life, eeking by, surviving, is the highest level of achievement. It means I can try again tomorrow to do “better” or “more”.

I’m at square one at the moment. Maybe not even there. Maybe it’s more of a “pre-square”. The square where you start brainstorming and making plans and getting organized. It’s a new year and there’s going to be a lot of change in the coming months. I’m allowed to start over. I’m allowed to throw out all of the plans and to-do lists that I’ve had in my notebooks and start a new one; one that’s relevant to what life is now, not what it was four months ago.

I guess that’s what this writing can be. It’s my start. It’s my “hello, world”. My return. To me. To life. To trying. To doing.

We’ll see what happens, I guess. I am glad I wrote. I feel more stable than I did at the beginning of it. I might still be laying face first on the ground, but at least it feels like there’s solid ground beneath me.

Dragon’s Horde 058: A Year Worth of Work

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This post is a majority of the projects I have worked on for the past year. Even though this part of my blog has been quiet, my fingers have been stitching away.

These projects saw me through my DSS class at work. They saw my start of nursing school. They also saw my cancer diagnosis and subsequent surgery.

These pieces of fabric have seen love, joy, hope, fear, sadness, anger, and frustration. The past year has been eventful. I’m ok with it.

Musing Moment 144: Revelations Not Resolutions

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I find it fitting to be writing this post on this the first day of 2020. I have not made resolutions for this coming year. Instead, I have been fortunate enough to have the time and space to have revelations instead; revelations I want to share.


Revelation One
My life is about to change. Not end.

There was one night, a few weeks back, where it got really dark inside of my head. I was alone in the apartment. It was night time. I was ridiculously tired from work. I hadn’t been sleeping or eating well.

I felt lost. Hopelessly lost. I felt weak and powerless with no way to change or control the things going on in my life. Nothing to look forward to. Just the endless cycle of work and sleep and chores and paying bills.

I don’t think there are really words to accurately describe the battle I felt consuming me from the inside out. A battle I knew I was losing, slowly, surely, day after day after day after agonizing day.

During my battle that particular night, during that moment of darkness, I looked up different ways to overdose. I didn’t want to end my life, but I needed to know what would happen if I did. If it got bad enough for me to follow through, what would I do and how? What would the side effects be like? How long would it take? Would it be painful? If it were found out, what medical interventions would take place?

Through doing that, researching, I realized I didn’t want to kill myself. I didn’t want my story to end, but I wanted, needed, something to change. Death wasn’t want I wanted. At least not death of my self… just of my life; of the things fucking with my life. I wanted all of these outside forces wrecking havoc on me to die; my cancer, my stress, my expectation of myself.

Ox and I ended up having a conversation, I believe it was the next day. He asked how I was doing. It was a different question than the normal, “how are you feeling?” or “how was your day?”

Ox: How are you doing?

Me: Not well.

I said those words with a voice on the verge of breaking as tears rolled down my face because I knew them to be true, but how do you tell the person you love that you were looking up different options for suicide without them freaking out or worrying more or any number of things that could go horribly wrong by being honest? How do you bear your soul and the pain you feel like no one else can understand and elaborate on “not well” without the risk of ruining everything?

The truth is, you don’t. You have to take that risk. You have to be honest, with them, with yourself. You have to trust that you can let go of the fear you’re clutching onto like a life line and that the other person will be there to catch you, hold you, hug you.

When he asked what I meant by not well I said I was afraid to talk about it. I was afraid to explain what was going on inside my head. I was afraid of losing him. I was afraid of losing my job. I was afraid of being put in an institution. I was afraid of fucking it all up further by admitting that I was having these thoughts.

He helped me past that fear and I told him about what I had been looking at on my phone that night as I lay in bed fighting with my self. I told him how I was so tired mentally, emotionally, spiritually, that I didn’t know how to keep going forward; how to keep putting one foot in front of the other and getting out of bed and showering and eating. I didn’t know how to keep doing it but I didn’t know how to make it pause either. I didn’t know how to catch my breath or find my footing or a handgrip to keep it from feeling like I was falling into a never-ending abyss of hopelessness.

We talked for a long time and in the end, I didn’t have any sort of answer or solution, but I felt safer. I had shared what I thought would be something horrific that would lead to alienation and came out the other side of the conversation with a stronger foundation of trust.

I learned that I CAN share dark, unsettling things and that Ox and I will still be ok. That I will be ok. That thoughts and feelings ARE ok, even when they’re as extreme as that.

Sharing those thoughts, admitting to those actions took away the guilt and shame that I had been feeling. The weakness. The loneliness.

A few days later I met with my counselor. We talked about my upcoming surgery, how my dad is going to be here for a week during the procedure. We talked at length about my research into overdosing and my feelings about the events afterward with Ox. We talked about how I felt about actually looking into things like that.

Recently Ox made a comment about a post he saw where another person who had contemplated suicide wrote that he didn’t want his life to end, he wanted his life as he knew it to end. He wanted, needed, it to change.

I feel like that is true for me. I can relate to that statement. I don’t want my story to end. I don’t want to die. I want how I know life now, currently, with all of the internal pain and anguish and sorrow, to end. I want things to be different.

I think on a subconscious level I have been allowing myself to feel victimized. Victimized by Life and the Universe. By my self. By my body.

In the book, Leadership from the Inside Out, it is written that everyone is a leader. Be it the leader of a company, a team, or of your own individual life, we are all leaders.

I have not been acting as a leader. At least I don’t feel like I have. I have been haphazardly jumping from one event, one crisis to another. I have not put much thought behind my days. I have not had clear, defined intentions. No strategy. No goal other than “survive”.

If we want change, then it starts within ourselves. If I want my life as I know it to end, to change and transform, then I am the only one who can take the actions required for those changes to occur.

Revelation Two
I have the power to start a new chapter.

This is my life, and while I may not have control over the events that occur in it, I do have control over my response to those events.

I have cancer. I cannot make that fact untrue. It will always be true. Even once my thyroid is removed, I will still have had cancer. I will be changed, physically, because of that cancer. That cannot be undone. Denying those facts is useless. Being angry about those facts is useless. Denial and anger change nothing. Facts do not care about emotions. They will continue to be true regardless of how you do or do not emotionally respond to them.

So I have a choice. I can continue feeling angry, sad, lost, and scared, or I can accept that this is happening in my life and continue writing my story.

My surgery is in two weeks. These two weeks will be the prequel to my new chapter. Surgery will be a big event in my life. It will be life-changing. I will have to learn how to be comfortable in my skin again, knowing that a stranger has touched things within my own body that were never meant to be touched. I will have to learn to be ok with the knowledge that there is in fact, a part of me missing. I will have to learn that I am not defined by organs.

I will have to learn while some scars, most scars, are invisible, some are very real and cannot be hidden. I will have to learn how to explain why I have such a mark on my neck. I will have to learn to function with and through the sympathetic eye contact from my patients, coworkers, friends, family, and strangers.

This coming year will be a year of learning. Learning how to be me through all of the mental, emotional, and physical adjustments I will need to make. While very little of my everyday routine will need to change, there will need to be changes. That marks a loss of familiarity and that loss is just as real and valid as the loss of an organ.

Post-surgery will be a new chapter in my life not the end of it. I will still be me, but it will be a me that I need to get to know, learn to care for and be empathic and compassionate with.

Revelation Three
I am not who I was.

I keep trying to “find myself”. I keep remembering how I was before mom’s death or before becoming a dialysis technician. I keep comparing myself to what I used to do or how I used to be. I keep looking for my old self and the harder I look and try to get back to “there” the more lost and hopeless I feel.

I don’t know when, where, or how it came to me, but I realized I am no longer that person. I mean… yes… I’m still me, but my life has changed so drastically in the past three in a half years…

How could I be exactly the same? How could I handle situations exactly like I used to?

What a disserved to the person I have become and am becoming to constantly look back to 27-year-old me as my marker for excellence and success and grace through stress.

I have changed and that is why I can no longer find the old me. I am no longer that version of my self. I keep looking for something that doesn’t exist anymore; for something that CAN NEVER exist anymore. And that, too, is not a bad thing. I am myself, will always be myself, but there have been changes and iterations and updates that I, personally, need to acknowledge and accept.

I need to stop looking at my past and realize who and what I am in the present. I need to be aware of everything that I am going through rather than brushing it off or downplaying it or berating myself for not handling it better.

What had berating myself gotten me? Nothing except shame, guilt, and suicidal thoughts.

How is that in any way beneficial to anyone, most of all myself?

It’s not and so I’m done doing it. I’m done disrespecting my current self by searching for something I can never be again.

Revelation Four
I do have a home.

I have been missing mom a lot recently. Well… always, but holidays and my birthday are where the waves of pain seem strongest. Mom was always home. It didn’t matter where she was. Whenever I thought of “home” it was of her. Her smile, her laugh, her eyes, her hugs.

Much like how I can no longer be the me of three and a half years ago, I can no longer have the home I used to have. While I do believe it is ok to miss what was, I feel I should have gratitude and acknowledgment of the things I do have.

As my birthday and Christmas presents this year, Ox’s parents gave me money for the class I will be taking during the spring semester. I’m stepping back from the LPN program due to the surgery, but I will be taking Introduction to Sociology; a prerequisite for the RN program. I mentioned during dinner one night how I wasn’t going to be eligible for financial aid since it is only a 3 credit hour course, but Ox and I had looked at finances and we believed we could afford it.

Ox’s parents signed my cards, “Mom and Dad [last name here]”.

I was so touched. So deeply, profoundly, touched. I am not their daughter. They have no obligation to me what so ever, and yet here they are, helping me with something that is important to me. These people opened their house to me, share their food with me, care for me, and love me.

No, they aren’t my family. No, they cannot replace mom. But that doesn’t mean I can’t love them in return or think of them as Mom and Dad [last name here]. That doesn’t mean I can’t find a new home for the new me in this new chapter of my life.

So that’s where I’m at currently inside my head. I will remember and honor my past but I am no longer going to continue searching for it in my present life.

This will be my Year of Learning. Learning to be present. Learning to be grateful. Learning how to write this first, new, post-surgery chapter of my life.

Musing Moment 100: 2017 Resolution

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This is the first New Years without mom.

I had thought today would be hard, but just like my birthday and Christmas I made it through this day, and I’ll make it through the night, and tomorrow, and the days after.

Sitting here in the relative silence of my room, since it can only be so quiet with fireworks going off, I’m struck by how much I have been changed by the experiences I have had this year.

It started with running my first Warrior Dash on February 6th, an event I am about to do again. That race helped me overcome so much negativity in my past. Hurtful comments. Self-doubt. Things which were like cancer, eating away at me from the inside, irradicated. Gone. A stronger me taking the place of the person I had been only an hour before, emerging from the last giant mud pond with the unshakable truth of knowing I had completed the race. I WAS good enough and I had proven it to the most important person; myself.

Then March 28th dawned. At three in the morning I woke to what seemed like an endless stream of messages on my phone from my family trying to reach me while I slept with my phone on silent.

Mom was in surgery and we didn’t know if she would make it. I spent five hours on the first plane I could get to. Five hours of not knowing if she would be there when I landed. Five hours of begging the Universe with everything I had for her to hold on long enough for me to say goodbye.

This year taught me what it truly means to beg. I feel that is something most people don’t understand, can’t understand until they are in such a situation. Until it’s life versus death and you would give literally everything in your whole existence if only for a few more moments of life.

The two weeks that followed allowed me to understand what true devotion is. I devoted two weeks of my life to the kindest, most caring, most loving person I will ever have the grace to know. There were a lot of excruciatingly hard moments while mom was in the hospital, but there were a lot of really good moments, too, and I cherished every moment of every day because those were moments she was alive. Even if it was a bad moment it was amazing and I clung to it for not knowing if it would end.

And then April 4th, 2016.

Mom died.

It’s a cold, sobering fact in my life. Saying those words, typing them doesn’t cause the anguish it once did. It’s not that the words are easier. It’s more like the grief I feel is something I have grown accustomed to. I understand it better. I cope with it better.

At first, I raged against it. Struggled. Fought. I tried to control it with logic and rationalizations.

But emotions don’t work that way, and the more I tried to force the emotions to be something they weren’t, the more they swelled up until they were overpowering tidal waves that pulled  me down, submerged me, immersed me until the only things in life were the emotions I tried so hard to deny.

For the longest time, I struggled with accepting the terms “grief” and “grieving”. They felt so hollow, so empty. They didn’t encompass everything I felt. They didn’t capture the burning, scorching fire of rage. They didn’t capture the sinking feelings of hopelessness and isolation. They didn’t convey the apathy and flatlined stillness that filled most of my days. They didn’t carry the icy weight of abandonment.

It wasn’t until someone made the offhanded comment that grief transforms a person that I began to understand what I was going through. Grieving is a type of transformation. It’s not a destination or an emotion. It’s a process wrapped up into a single word.

Transformations take effort, and energy, and willpower, and time.

Looking back at all of the events, mentioned and unmentioned, which transpired this year I’m left aware of how this year has shown me who I am.

I am my mother’s daughter. I am one of many people who continue to carry her light. I will shine, and guide, and mentor, and I will be the person my mother raised me to be.

My resolution this year isn’t to form a new habit. It’s not a goal or a number to reach or a career placement to achieve.

My resolution is to be happy.

That was one of my mom’s last wishes for me. For me to be happy.

It took me six months to legitimately feel that emotion again. Long enough that I began to doubt my ability to feel it. I had begun to think I was broken. Damaged. My heart chakra marred for the rest of forever.

I’m not broken, though. I can still feel happiness and I will honor her wish. I will honor it this year and every year following.

I will live my life and I will live it in such a way that I am happy.

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