At the moment I’m trying to keep up with my life and figure out my emotions so please bear with me. It’s going to take some time and effort to sort through everything, and it begins with these initial writings.
Written Wednesday, November 27th.
The past few weeks/months have been a bit of a ride, medically speaking. And in true “Jen” fashion, I haven’t been keeping up with writing or checking in with myself, so this is going to be a huge “catch up” post in a relatively short amount of time since I have to leave soon for an appointment.
It started with my yearly checkup for work insurance purposes. My primary care physician thought my thyroid was swollen. She ordered lab work to be done and said even if my levels came back fine, because of my family’s history with thyroid issues, she would like for me to have an ultrasound on my thyroid done.
That took me to an endocrinologist who ordered yet more lab work and got me set up for an ultrasound at one of the hospitals here in Lincoln. I went to the ultrasound alone. In hindsight, that most likely wasn’t the smartest option. At the time I wasn’t worried about it. It was a non-invasive procedure. Nothing to worry about, right?
Wrong. Very, very wrong.
Being in a hospital again, laying down on a table and having medical staff doing things to me brought back all sorts of emotions from when mom was in the hospital. It didn’t matter that it was three years later. It didn’t matter that it was me and not her. It didn’t matter that it was a non-invasive procedure or even that the two hospitals were totally different and that it was a billion degrees outside in Vegas all those years ago while here it was borderline snowing.
None of those facts, none of that information, mattered. All of the hurt and loss and loneliness and vulnerability simmered at the edges of my mind as I checked in for my appointment and only grew the longer I was there, the further my procedure went.
I held my emotional shit together long enough to make it back to the car and to call Ox before completely breaking down. I sobbed into the phone for I don’t know how long, terrified. I was terrified of having to go back to the hospital. I was terrified of having to be ok enough to drive home. I was terrified of losing everything that I had fought for in the three years since mom died. And as stupid as it sounds, I was terrified of losing mom again. I was terrified of being alone and facing all of these intangible things by myself because how do you fight things you can’t see or touch or feel?
I was scared and hurt and alone and the only thing I could do was cry alone in my car, clinging to my phone as if Ox were my life support getting me through the overwhelming crush of my emotional tidal wave.
Eventually, after listening to his voice and talking and lots of crying, I was ok enough to drive home. The only thing there was for me to do at the point was wait to be called with the results of the ultrasound.
The results came back early the next week. There was a nodule on the right side of my thyroid. Since we didn’t know what it was they wanted me to schedule a biopsy. You know… because poking at random, unknown things inside your body with needles is a great idea… said no one ever.
I had the biopsy. I still feel like I got punched in the throat. Ox was there with me for that procedure and I faired better emotionally, most likely because he was there to help keep me grounded and outside of my head.
I got a call Monday evening from my endocrinologist herself. She took the time to call me personally, after hours, to deliver the results of said biopsy.
The nodule is positive for cancer.
Yeah…
You read that sentence correctly.
I have thyroid cancer.
I was blindsided by her statement. I wasn’t expecting cancer. Maybe a benign tumor because my T levels kept coming back fine… but cancer? Fucking cancer…?
Do you realize what this means for me?
Do you realize that I now have to call my brothers and tell them I have cancer only three and a half years after mom died? Do you realize how many people I have to inform, personally, because this isn’t something that I can make a post about on Facebook?
Me: “Hey guys! Just wanted to let you know I have cancer. Oh! And here’s a picture of a cat. K. Bye. : D”
I know mom had thyroid cancer before I was born and was able to take daily medication and still live an extremely full life. I know logically that as far as bad news goes, getting thyroid cancer is pretty much the best bad news you can get.
That hasn’t stopped me from having nightmares about it. That hasn’t stopped any of the emotional reactions that I’ve had. That hasn’t changed the fact that I realized, finally, why I can’t fight that evil voice in my head when it starts giving me shit and telling me that I’m a failure.
I know I’m not a failure. I doing well in nursing school. I’m doing well at work. I’m still making ends meet, if just bearly, financially. But when it started saying “You’re a failure,” shortly after having to schedule the biopsy, I couldn’t figure out why it felt true. I know it’s not true, so why does it feel that way?
I realized it’s because unconsciously one of my biggest goals since mom died has been to be healthy enough, stable enough, for my brothers to not have to worry about me. Looking at it objectively, that’s a fairly unrealistic goal. Regardless of it being realistic or not, it was my goal and I failed to achieve it, since now I have cancer and all of this medical shit on the horizon, and so I’m a failure.
Right now, I’m waiting to go into town with Ox to have my consultation with the surgeon. I’m waiting to figure out where and when I will have part of my body removed. I’m waiting to tell everyone in my life what the next steps will be and when.
I’m waiting.
I’m waiting.
I’m not good at waiting and underneath everything else I have going on in my life is the fact that even though we did everything right with mom, even though we followed all the steps the way we were told, we still lost.
I don’t want to do this. I don’t want to meet with the surgeon. I don’t want to have surgery. I don’t want to have to figure all of this out and how to pay for it and how to not fuck up shit at work and put more stress on my team.
I don’t want to do this.
Not only do I not want to do this. I don’t want to do it alone. Last night while I was alone for a little bit I started crying as I laid in bed with the kittens. I started talking to mom. I told her I missed her and that I wanted to come home and be with her. I know she went through this exact thing, but I never got to talk to her about it. I don’t know what she felt or experienced. I don’t know what post-surgery was like for her. I never thought of mom as a cancer survivor, but she was. Was she scared when she found out? Did she cry? Did she feel alone? Did she struggle with wondering if she would be less human after the surgery because part of her was missing?
I want her to hold me and to tell me it will be ok.
I know it will be. It will be as ok as it can be, at least. Ox will be there. My dad offered to be there. So many people have been supportive and understanding. Apparently, a lot of people in my life think I’m a badass and that I’ll kick Kevin’s ass. I was told to name my cancer to make it more real, more tangible, then referring to it as “thyroid cancer”.
Sorry for any Kevin’s out there who may take offense to me using your name. It was a random name thrown out there by Mother Earth and so it has stuck.
I don’t feel like a badass. I feel scared and vulnerable and alone all over again and all I can think of is how I’m going to look so much like mom, in a hospital gown, in a hospital bed, completely out of it from the anesthetics… I can’t have my brothers there. I can’t put them through that again. I wasn’t supposed to put them through this. I was supposed to be ok.
I want to say I can’t do this. I want to give up and tell Life that it wins and this joke isn’t funny and I’m ready to go home and not play this shitty game.
I’ve been freaking out over the next semester of nursing school since the third week of this semester. How am I supposed to go through a surgery that’s going to fuck with my hormone levels and leave me tired and still go to school three days a week and work full time and still figure out laundry and dishes and meals and bills… I just want to say fuck it to everything.
I want to hide away under the blankets in my darkened room with the kittens and pretend that the bad things don’t exist and they can’t get me and I’m not hurting the people I love the most.
I don’t want to do this, but I have to. I have to try to be ok because I have too much debt to die now. I have too many people who care about me to not have this surgery. I have too many conversations I want to have with people I love. Too many goals at work that I haven’t reached yet. Too many things Ox and I haven’t done.
I don’t want to do this but I’m going to because fuck Kevin. He doesn’t get to control my life. Fuck you, Kevin. Fuck you and the horse you rode in on. I’m angry at you for making me drag everyone in my life through this. This isn’t fair. Three years isn’t long enough. We aren’t recovered enough to go through this all over again. Fuck you, you inconsiderate asshole.
At the same time, thank you. Thank you for not being terminal. Thank you for being treatable. Thank you for not spreading or destroying my entire life. You’re an asshole and I’m still angry at you, but thank you for not being worse than what you are.
Please be with me, mom. Please don’t let me go through this without you. I love you. I miss you. I need you. Please help me, mom. Please be here with me so I can do this.